Thank you so much for sharing your experiences. Those are great ideas to maintain a low sodium intake. When you use No-SALT do you have a concern for high potassium intake? I heard that it would do hard to the kidney. Considering the TDF I am taking also have side effects on kidney, I am not sure if it is a problem. If this is not a big concern, I think it is a very good solution to use No-SALT sometime to have a better taste.
Iāve heard conflicting things about it but I use very little. Itās not suitable for soups or anything as it dissipates so I only use it on a few items. I also understand sweets need to be regulated for kidney issues as well. I watch this but not as much as Iāve never really been a dessert eater.
I drink protein shakes with skim milk as I was told by gp and liver specialist to take as much protein as possible to make up for the minimal caloric intake.
Thanks, Denny. I agree with you that not all foods need to be seasoned with salt. So it should be good if we use the potassium replacement moderately. I donāt have much sweet things either so sugar is not a concern. For protein, yes, I just watched a video from a MD in Michigan University talking the high protein intake and cirrhosis. It is important to take more protein to maintain a good muscle mass.
Iām in a pretty good place now. I never held anything against whoever gave this to me and I still donāt. But itās what itās done to aspects of my life that haunted me for some time. Now Iām just glad to be alive after coming so close to taking my life in my darkest hours. Things could always be worse ā¦and they ARE for so many around the world.
Hang in there, geomoā¦
Denny
Hi @desolation_jones,
Welcome to the community. Use caution when taking any supplements. Their safety and efficacy is difficult to ascertain at times so patients are encouraged to be careful around this stuff. NAC is supposed to provide antioxidants, but there are plenty of readily available fruits and vegetables that are high and rich, and maybe healthy as well for the body. For $20 plus you can get some delicious fruits out there lol. Just my opinion. Best, Bansah1
Thanks for sharing, but if you remember I didnāt say donāt take it. I advised that you exercise caution about supplements and that if you need antioxidants there are unprocessed and noncommercialized fruits and vegetables full of it out there. Best, Bansah1
Yes, I understood your response. Iām mainly trying to figure out if itās safe to take NAC with tenofovir and if anyone has positive experiences with it. I already eat (what I believe is) a healthy diet. I am vegan and always try to choose a diverse and organic option. I smoke, but I am trying to quit. Itās strange, I contracted hepatitis B from unprotected sex, but I also have a history of mental health and addiction issues (bipolar disorder, ADHD, and a multi-substance addiction to both benzodiazepines and stimulants, which I have stopped), yet quitting smoking has clearly been the hardest addiction to overcome. In addition, I walk daily, more or less 10 kilometers, and practice meditation every day. One of my meditation practices is the so-called āGuru Rinpoche and Mandarava long life practice,ā but I would like to support this by taking supplements that are liver-friendly. Both of these approaches are speculative according to modern medicine, if not pseudo-scientific, but I would encourage everyone to also try alternative methods for managing chronic hepatitis B. AND OF COURSE, to take the medications prescribed by Western medicine as well. All the best to everyone, and thanks for the responses.
Great questions. Indeed, NAC has been shown to be helpful with acute liver failure in preventing death. However, no evidence is there to show that NAC will be beneficial for chronic conditions such as HBV infection.
Also, these studies are using direct injections of NAC in clinics rather than dietary supplements. It is unclear whether supplements with NAC in them 1) actually have NAC in them, as they are unregulated; 2) have enough NAC in them to convey therapeutic doses of the compound into the liver; 3) are effective at all.
Hope this puts some context around your decision,
Thomas
It is a long thread. Finally I read through. I didnāt see anybody mentioned spicy food here. Spicy food is generally considered to be good to our health. But I donāt know if spicy food is good to anybody with hep b.
Based on your test results, it appears that you had a previous HBV infection, and you have now cleared it. In this case, you would not be able to transmit the virus, so I wouldnāt panic about your baby not receiving the vaccine immediately. Itās still important for kids to be vaccinated, so I recommend asking about it at your next appointment with the pediatrician.
āIām not the problem here ā Iām just worried about my child. During pregnancy, I only did the HBsAg test, and now itās bothering me psychologically because my baby didnāt receive protection at birth. She got the first dose after two months, then another one, and now she is 14 months old and still hasnāt completed the third dose.ā
Please, if there is any mother who had the same situation as me, I would really appreciate if you could share your experience. I am very scared. I did not receive any therapy during pregnancy, and my baby did not get the vaccine at birth. What is the risk for my child?
Hi @Aleksaa,
I hear you, and your frustration is understandable. Based on the results, you have a very high level of protection and no evidence of a current/ongoing infection, meaning there is no risk of infection to your child. While your child was not vaccinated right after birth, they can still get vaccinated. You can arrange this with your doctor and get your child vaccinated.
Your past exposure should not be a factor because of your higher level of antibodies and protection against HBV.
I hope this helps.
Bansah1
@Aleksaa I understand your concern, and agree with @Bansah1. If it has been more than 3 months since your daughterās second dose of the vaccine, she should get a third dose to complete the series. Once you have done that, you could take her in for blood work 1-3 months after completing the vaccine series to check that sheās developed antibodies. This is by no means required, but itās an option if it would make you feel better.
I would be the happiest mother in the world if she were negative, if she has nothing to do with my results. She is still very small, and it is killing me inside that I might have harmed her, because she is everything I have. This has completely broken me. I am not sleeping or eating, and I have been struggling for two months. I have no strength to even think that she could have gotten it from me. I am sorry, but your comments really mean a lot to me.
We see you. Please take it easy. Based on the results you shared, be assured that your child is not infected with hepatitis B, and the vaccines will provide them with long-lasting protection. Please try to eat as you need it for energy and to enrich your breast milk for your child. Keep us updated whenever you can. Best, Bansah1
Welcome to the forum and sorry to hear about how stressed you are. Given the results youāve provided, the chance of transmission during birth is essentially 0. Itās great that your baby has gotten the first two shots of their vaccination, which will act to provide some protection already (3 are required for long-lasting, life-time protection).