Lifestyle changes, nutrition, and supplements for hep b

Hi Denny,

Thank you so much for sharing your experiences. Those are great ideas to maintain a low sodium intake. When you use No-SALT do you have a concern for high potassium intake? I heard that it would do hard to the kidney. Considering the TDF I am taking also have side effects on kidney, I am not sure if it is a problem. If this is not a big concern, I think it is a very good solution to use No-SALT sometime to have a better taste.

I’ve heard conflicting things about it but I use very little. It’s not suitable for soups or anything as it dissipates so I only use it on a few items. I also understand sweets need to be regulated for kidney issues as well. I watch this but not as much as I’ve never really been a dessert eater.

I drink protein shakes with skim milk as I was told by gp and liver specialist to take as much protein as possible to make up for the minimal caloric intake.

Denny

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Thanks, Denny. I agree with you that not all foods need to be seasoned with salt. So it should be good if we use the potassium replacement moderately. I don’t have much sweet things either so sugar is not a concern. For protein, yes, I just watched a video from a MD in Michigan University talking the high protein intake and cirrhosis. It is important to take more protein to maintain a good muscle mass.

I’m in a pretty good place now. I never held anything against whoever gave this to me and I still don’t. But it’s what it’s done to aspects of my life that haunted me for some time. Now I’m just glad to be alive after coming so close to taking my life in my darkest hours. Things could always be worse …and they ARE for so many around the world.
Hang in there, geomo…
Denny

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Hello everyone.

I’m on Tenofovir disoproxil 245mg. I was wondering is NAC safe to take along with it?

Hi @desolation_jones,
Welcome to the community. Use caution when taking any supplements. Their safety and efficacy is difficult to ascertain at times so patients are encouraged to be careful around this stuff. NAC is supposed to provide antioxidants, but there are plenty of readily available fruits and vegetables that are high and rich, and maybe healthy as well for the body. For $20 plus you can get some delicious fruits out there lol. Just my opinion. Best, Bansah1

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Hey @Bansah1 and others!
The seems to be a lot of evidence that it would be at least beneficial to take NAC when suffering from a liver disease.

N-Acetylcysteine Improves Liver Function in Patients with Non-Alcoholic Fatty Liver Disease

Role of N-acetylcysteine in non-acetaminophen-related acute liver failure: an updated meta-analysis and systematic review

The Use and Potential Benefits of N-Acetylcysteine in Non-Acetaminophen Acute Liver Failure: An Etiology-Based Review

Early treatment with N-acetylcysteine in children with acute liver failure secondary to hepatitis A

Thanks for sharing, but if you remember I didn’t say don’t take it. I advised that you exercise caution about supplements and that if you need antioxidants there are unprocessed and noncommercialized fruits and vegetables full of it out there. Best, Bansah1

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Yes, I understood your response. I’m mainly trying to figure out if it’s safe to take NAC with tenofovir and if anyone has positive experiences with it. I already eat (what I believe is) a healthy diet. I am vegan and always try to choose a diverse and organic option. I smoke, but I am trying to quit. It’s strange, I contracted hepatitis B from unprotected sex, but I also have a history of mental health and addiction issues (bipolar disorder, ADHD, and a multi-substance addiction to both benzodiazepines and stimulants, which I have stopped), yet quitting smoking has clearly been the hardest addiction to overcome. In addition, I walk daily, more or less 10 kilometers, and practice meditation every day. One of my meditation practices is the so-called ā€œGuru Rinpoche and Mandarava long life practice,ā€ but I would like to support this by taking supplements that are liver-friendly. Both of these approaches are speculative according to modern medicine, if not pseudo-scientific, but I would encourage everyone to also try alternative methods for managing chronic hepatitis B. AND OF COURSE, to take the medications prescribed by Western medicine as well. All the best to everyone, and thanks for the responses.

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Hi @desolation_jones,

Great questions. Indeed, NAC has been shown to be helpful with acute liver failure in preventing death. However, no evidence is there to show that NAC will be beneficial for chronic conditions such as HBV infection.

Also, these studies are using direct injections of NAC in clinics rather than dietary supplements. It is unclear whether supplements with NAC in them 1) actually have NAC in them, as they are unregulated; 2) have enough NAC in them to convey therapeutic doses of the compound into the liver; 3) are effective at all.

Hope this puts some context around your decision,
Thomas

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It is a long thread. Finally I read through. I didn’t see anybody mentioned spicy food here. Spicy food is generally considered to be good to our health. But I don’t know if spicy food is good to anybody with hep b.

Hi,

I have a question regarding my hepatitis B test results during pregnancy.

My results are:

  • HBsAg negative

  • anti-HBc positive

  • anti-HBs 944

I gave birth to my baby, but my baby did not receive the hepatitis B vaccine immediately after birth.

With these results, is there any risk that I could have transmitted hepatitis B to my baby during pregnancy or delivery?

Thank you in advance for your answer.

Hi @Aleksaa, welcome to the community!

Based on your test results, it appears that you had a previous HBV infection, and you have now cleared it. In this case, you would not be able to transmit the virus, so I wouldn’t panic about your baby not receiving the vaccine immediately. It’s still important for kids to be vaccinated, so I recommend asking about it at your next appointment with the pediatrician.

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English:

ā€œI’m not the problem here — I’m just worried about my child. During pregnancy, I only did the HBsAg test, and now it’s bothering me psychologically because my baby didn’t receive protection at birth. She got the first dose after two months, then another one, and now she is 14 months old and still hasn’t completed the third dose.ā€

Please, if there is any mother who had the same situation as me, I would really appreciate if you could share your experience. I am very scared. I did not receive any therapy during pregnancy, and my baby did not get the vaccine at birth. What is the risk for my child?

Hi @Aleksaa,
I hear you, and your frustration is understandable. Based on the results, you have a very high level of protection and no evidence of a current/ongoing infection, meaning there is no risk of infection to your child. While your child was not vaccinated right after birth, they can still get vaccinated. You can arrange this with your doctor and get your child vaccinated.

Your past exposure should not be a factor because of your higher level of antibodies and protection against HBV.
I hope this helps.
Bansah1

@Aleksaa I understand your concern, and agree with @Bansah1. If it has been more than 3 months since your daughter’s second dose of the vaccine, she should get a third dose to complete the series. Once you have done that, you could take her in for blood work 1-3 months after completing the vaccine series to check that she’s developed antibodies. This is by no means required, but it’s an option if it would make you feel better.

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I would be the happiest mother in the world if she were negative, if she has nothing to do with my results. She is still very small, and it is killing me inside that I might have harmed her, because she is everything I have. This has completely broken me. I am not sleeping or eating, and I have been struggling for two months. I have no strength to even think that she could have gotten it from me. I am sorry, but your comments really mean a lot to me.

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We see you. Please take it easy. Based on the results you shared, be assured that your child is not infected with hepatitis B, and the vaccines will provide them with long-lasting protection. Please try to eat as you need it for energy and to enrich your breast milk for your child. Keep us updated whenever you can. Best, Bansah1

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Hi @Aleksaa,

Welcome to the forum and sorry to hear about how stressed you are. Given the results you’ve provided, the chance of transmission during birth is essentially 0. It’s great that your baby has gotten the first two shots of their vaccination, which will act to provide some protection already (3 are required for long-lasting, life-time protection).

Hope this helps,
Thomas

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