INTRODUCTION THREAD: People affected by Hep B

I am Tested positive as my Signal/ Cutoff ratio is more than 1 e.i, 7500 when it was first checked in 2023 after that i didn’t do the test for HBsAG. but for HBV DNA Quantitative viral load is Undetected last month I Tested for it.

That is great that your DNA is undetectable! I agree with @Sanjay1 that you might want to get your HBsAg re-tested in case you have been able to clear the infection.

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Thank you, @Sanjay1 and @et5656, for this information, sir. I did not know about it. I will get retested today for HBsAg.

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Hi Ravi,

Better get the HbsAg quantiative test instead of HbsAg qualitative test. HbsAg clearance + HBV DNA undetectable is considered as functional cure.

Dear @ravimehra,

Welcome to the forum and thank you for sharing your story. I hope you find the support you need here.

Generally a qualitative HBsAg test is sufficient for diagnosing clearance of HBV infection and is usually more accessible/cheaper.

Thomas

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Hi @ThomasTu,

Please share the correlation between HbsAg clearance and HBV DNA undetectable levels for people not on medication for years.

Hi @Sanjay1,

I don’t quite understand what kind of information you’re looking for and for what reason. Could you please expand and clarify a bit so that I can help out a bit more?

Thanks,
Thomas

Hi @ThomasTu ,

Wanted to understand that HbsAg will always be negative if HBV DNA count goes undetectable naturally without taking medication.

Hi @ravimehra, Hope you have tested for HbsAg.

Hi @Sanjay1, thanks for clarifying. It is not the case that undetectable HBV DNA always leads to HBsAg negativity. However, if you are HBsAg negative, the majority of the time you will have undetectable HBV DNA.

Thomas

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Hello Everyone,

I’m grateful to have landed on this site. I’m in the middle of testing and the results are inconclusive. My initial results show core Ab positive, surface Ag negative, surface Ab negative. I have to go back in a few weeks for more blood work, but I’m feeling very lost, alone, and hope to find others here to talk to, as I fear sharing this information with anyone in my family/friend group. Can you all shed some light on how you got through the initial shock of the news and how you were able to get support through it? Thank you again for this community and I hope to connect with others to feel less isolated.

Hi @231,
Welcome to the community, and I am sorry to meet you under these circumstances. It can feel overwhelming and heavy when you first get the diagnosis. Feeling alone, lost, angry, frustrated, depressed, etc., among others. Since the first result is inconclusive, I will suggest you try and take it easy. Do not be too hard on yourself. It could be nothing in the end, but I understand it is in our nature as humans to get concerned about stuff like this. We are here for you and eager to support you through this. Feel free to share what is on your mind, and we will respond.

In my case, I didn’t have an initial shock. Probably because I have been searching for the source of my problems, and finally I could put a name to it. My anger, frustration, feeling lost, etc., came later. Like you, I didn’t know who to talk to. I tried reading a bit about HBV, and it did help a bit. I made sure not to overdo it, as some information on Google is inaccurate and misleading. That could create problems on its own. Over time, I came to peace with my diagnosis and understood the disease, which reduced those feelings.
I hope this helps. Bansah1

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Thank you so much for the kind words. I’m trying to remain calm and positive, but it’s hard since I don’t know one way or the other. Trying not to go to the worst case scenario and marinate there is hard, which is fatiguing emotionally (and then physically). I appreciate your response so much.

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Hi @2319,
I understand that feeling. We have all been there. It feels like you are carrying extra weight. Sometimes having a distraction can help. Going for a walk, having a normal conversation with family and friends, listening to music, or finding something to occupy you can help you take your mind off things for a while. At least they helped me. We are always here for you. Best, Bansah1

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Hi everyone

I’m Ndebugri Ahmed from Ghana l currently tested positive and it was terrible moment for me because I have lost my beloved brothers already.

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Hi @Nde96,
Welcome to the community, and I am sorry to hear about your departed brothers. I am also a Ghanaian, and I worry about my brothers, too. I am glad you found this community, and I hope you find it helpful and supportive. We are all here for you, so don’t hesitate to ask any questions you may have. Best, Bansah1

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Hi :smiling_face: my name is Sammie, female, 30 years old. I live in Australia but come from an East Asian family. My maternal grandmother, my aunt, my aunt’s husband, my cousin (my aunt’s daughter), and my partner have chronic HBV infection. My grandma died half a year ago at the age of 100 –not because of the HBV infection but because of organ failure. She was infected for a very long time, but cleared the HBV naturally when she was around 80 years old. We only knew it when she was tested. She never took any medicine. My aunt’s husband died 5 years ago due to liver cancer.

Recently, my partner tested HBsAg positive and started antiviral treatment. Since my family and my partner have been affected by HBV –I am too! I am here to share info and to help people who may feel worried or anxious, like the old me.

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Welcome @Sammie_J

Thank you for sharing your story and your willingness to help others suffering.

You must be a kind person.

Grandma living to 100 without treatment. Now that is inspiring.

Blessings

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Hellos everyone, I am Angelina from South Africa. I am 54 years old, in my 2 nd marriage and has a son of 26 from my 1 st marriage. I got Hep B ( I am a carrier) from my birth mom (she passed away when I was 6 of Liver Cancer due to Hep B), but only discovered it around my 19,s when I was studying and went to donate blood, but could not because I am a Hep B carrier (I could not donate blood because my blood pressure was to low, but they took a sample anyway). I was not told a lot by our GP at that stage (around 1989) apart from I only have to come back one day when I get married and have kids. So I just discovered your community yesterday and so happy to see a lot more people here with the same status. I was really under the impression that if I am healthy there is no risk for me, so I am very surprised and shocked at the same time to learn that there is risk involve for me.

When my son was born (vaccinated at birth against Hep B- I see he got 3 shots), the lady that was in the bed next to me was moved out because of my Hep B status and then they (staff) apologized and another lady was placed in a bed next to me. She was now obviously concerned about contracting something from me. So yes, I have never spoken to anyone apart my sisters, husband, sex partners and medical doctors about it. I have never received more info from my Doctors and they know about it, My 2 biological sisters also are Hep B carriers, my oldest sister passed away last year - her disease started as Lupus and over the years she also got Myelodisplacia.

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Hi @Angel,
Welcome to the community. We are happy you found us. I am sorry to hear about your mom and sister. I am also glad to hear that you are doing well and that your children were vaccinated. I understand why some patients don’t talk about their diagnosis; your experience at the hospital is one of the reasons. Stigma is a huge problem, and I am hopeful that education and awareness can reduce it.

Please take some time to read around, as there have been many discussions on the platform. Feel free to ask any questions you may have, and we will do our best to respond. Best, bansah1

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