My name is Paul and I was born with HBV. I live in the U.S. but was born in South Korea.
Even though I was born with HBV, it didn’t rear it’s ugly head until my late 30’s. I was diagnosed with cirrhosis in 2016 and started Vemlidy in 2017.
I have had many new ailments after starting Vemlidy in 2017 and encourage everyone to start treatment at the earliest possible stage that your liver specialist recommends. I can only assume I am dealing with so many new medical issues because I waited too long to start treatment.
I am finally getting a new hepatologist this month as my previous one was not very informative or helpful. I am constantly learning new things about HBV through online resources, the hblist and now hepbconnect. Hopefully, my new hepatologist will shed light on my particular situation because I have had this disease all my life and have been going to specialists for over 15 years and have learned that many sufferers have a lot more knowledge about the terminology and test results even though they aren’t at the cirrhosis stage yet.
I would like to thank Thomas for his contributions on the hblist and creating this new site with forums and message boards and private messaging, etc. It is always beneficial to have any resource for HBV and I look forward to what hepbconnect will offer.
P.S. - A note to Thomas: As you know, many HBV sufferers are hesitant to speak up. It took me many months of being on the hblist before I would contribute. Keep this in mind as you endeavor to provide this service to us. Hopefully enough people will start posting so that others will follow suit. It may take time, but keep at it, because even us quiet ones in the background need you.