Hey I’m fairly new to posting…I been reading a lot on here for months now after running across this when I was goggling to see if it was people in the world me!!! I found out I was positive for hepb after 3 month after having my 2nd child in 2015 after going back for 6wks check up and when I say I was so confused only thing I could think of that I done differently was get a tattoo I was so heartbroken and confused b/c honestly I didn’t know what it was and my dr wasn’t take it seriously in my eyes!! So I still continue to live with this in the back of my mind and I finally started taking it seriously after my last visit with my “new gynecologist” when she asked me have I been notified I have hep b and that my enzymes were high I knew then I needed help, so I started seeing a specialist, he made so many comments that made me feel so uncomfortable like I was promiscuous or just plan old gross in a professional way and I knew the first thing he said wasn’t true about me at all!! So I found a new specialist he notified my load was 1million and I needed to start taking treatment although I had “normal liver function” I had f2-f3 I was in denial again like WTH how did I get here…how this happen to me!!! Still to this day I feel like this! I feel like my life is over like I’ll never be able to have the things I desire husband a piece of mind or healthy, I have been sexually activate in forever…I’m not the same bubbly person I use to be or confident cause this is always in the back of my mind and I haven’t spoke to anyone about this and probably will never will!!! I’m so scared I’m going to give it to my kids I clean everything with bleach even tho they’ve had the vaccine I still am like this! Because I honestly think I’ve been vaccinated as well! Like is there a normal life after know you living with something thatll never go away!! Will I live or am dealing with something that’s a slow silent death!! Until it’s done all the damage it can do? Can you be the u you’ve always been I’ve been on treatment since June my load is 70 I haven’t gotten an other labs since the first visit so maybe when I go in Jan.
Hi @AriesWarrior36,
Thank you for sharing your inner feeling and vulnerability with us all. I hear and empathize with you. The feelings you have are normal reactions. I don’t think you should burden yourself so much about infecting others. We can only do so much as patients, so do not let that prevent you from living your life. As you have mentioned, your children are vaccinated and with developed antibodies against HBV you do not have to walk on egg shells around them. Enjoy your time with them, because they grow up fast and by the time you realize they are out of the nest on their own. Those times lost worrying rather than enjoying them could be hard to recoup.
It is hard living with this virus, but it should not determine or control our life. HBV is not a death sentence. As long as we take care of ourselves, remain in care, have a positive attitude and mindset, we can control this virus. We cannot allow this virus to control our life. I have been diagnosed since 2014 and I barely think about HBV. I don’t allow it to control my life, rather I continue to live my life with HBV as best as I can. Don’t let your diagnosis hold you down. Remember to live your life and enjoy the things you are passionate about. Life is too short to be worrying constantly about infecting others. As long as you are doing your best safety wise to protect others, that is all you can do.
Your treatment is doing what it is supposed to do in suppressing the virus as evidenced by your current viral load of 70 from June. Keep up with your treatment and please don’t forget to live. I hope this helps lift you up. Take it one day at a time. All these shall pass one day soon. Best, Bansah1
Thank you so much for those uplifting words,as I finished reading I took a deep breath and exhale. Because honestly I think that’s what I been needing to hear! Thank you, thank you!!
It is challenging, but we have to remember to breathe and live our life as best as we can. Hang in there. Bansah1
Dear @AriesWarrior36,
I join @Bansah1 in thanking you for sharing your story. As you explore this community, you’ll see people exactly in the same boat as you: you are not alone.
To answer your question, it does get better over time. We have here people who have lived decades of healthy lives with hep B. It is a condition to be managed, not only survived. Ongoing appropriate management can prevent many of the severe effects of hepatitis B.
Please keep us up to date with how you’re going.
Yours sincerely,
Thomas
Hello @AriesWarrior36
Sorry you are going through this.
It seems to be a similar pattern we al go through. I, for years wouldn’t hug anyone, thinking I might pass on the virus, which is a huge oversight and impossible.
I have had the virus for 40 years. So you can live along normal life.
Also had three children, one child I had without being aware I had the virus. He did not get the virus at birth.
The bleach is probably doing more harm. It’s a very strong, dangerous chemical.
Bleach Toxicity
Thanks for sharing your experiences, @Caraline. Yes there can be issues with using bleach. We know that detergents will do just a good a job of inactivating HBV and are probably a bit safer and less damaging to your items.
Thomas