I knew there was something that resonated with me more than just your personality. I am half Korean also. I am not certain if they are half or full but I believe @Joan_Block and @NeptuneJ are Korean also. I am sure there are plenty of others within this community as well, but those are the two I can recall.
I have tried so many things to overcome the side-effects of meds, the conditions and issues of cirrhosis and what it has done to my other organs. I have tried acupuncture, acupressure, physical therapy, occupational therapy, psychology, nutrition, exercise, and yes, even cbd. I have been quite desperate to alleviate pain and other issues over the past five… well almost five years.
However, I am starting to agree with the many doctors and specialists I have seen over that time span, that maybe I am just stuck the way things are. The damage has been done and maybe it’s my own fault since I didn’t agree and take the need for treatment seriously until I was already at the cirrhosis stage.
I was hoping (and still am) that this topic category would allow for others with cirrhosis to post their experience and in doing so, I would be able to relate with them or at least see where I stood relatively to others with cirrhosis.
I really want to help other people as much as I can with whatever time I have left. That is why I feel that I am in such angst to improve my quality of life. There is so much more I want to do, so much more I want to experience and so much more I want to do to help people and make more of an impact on the world or at least my community.
At least I am still in a compensated stage of cirrhosis. With all the medical conditions I have (The list of diagnoses from doctors could be an essay), maybe I should just count myself lucky to be able to function how I do. When I was first diagnosed with cirrhosis and my viral load was 3-4 million, I had to do the MELD tests for liver transplant. I was told that they would probably have to do a liver transplant if antivirals didn’t work. My hepatologist at the time didn’t seem very confident about the antivirals and seemed surprised how well they worked on my viral load and all the numbers hepatologists predominantly care about. I should probably be counting myself lucky instead of advocating so much for them to fix me. I think I could deal with all the rest if I could get the pain flare-ups and GI flare-ups to subside. Those are the two main things that disrupt my life so much. But again, maybe I should be satisfied that I am not in a hospital or dealing with all that comes with a liver transplant or even dead. Although, if you are dead then you wouldn’t be concerned with quality of life… lol
Thanks again for your prayers Eddie, I will keep you in mine also,