Live in the U.S. and experiencing HBV treatment access issues? Share your experience!

The Hepatitis B Foundation has been working to increase access to hepatitis B medications in the United States. To aid this effort, we are launching a new survey to collect treatment access stories, as part of the B the Voice Story Bank. These stories will help raise awareness around the issue and support future advocacy efforts to put an end to these discriminatory practices.

If you or someone you know has relevant experience, we encourage you to submit stories here: Treatment Access in the USPart of the B the Voice Story Bank by the Hepatitis B Foundation  Survey .


Under the Affordable Care Act (ACA), people living with chronic diseases like hepatitis B are protected from discriminatory healthcare policies and health insurance benefit plan designs. Despite such legal protections, health insurance companies have found other ways to discourage people living with hepatitis B from choosing their plans.

Discriminatory treatment access actions include, but is not limited to:

  • Generic drugs on pricing tiers 3 and above
  • Placing most or all hepatitis B treatments on the highest tiers
  • Requiring coinsurance rates instead of copays for most or all hepatitis B treatments
  • Mandatory physician’s approval (prior authorization) for first-line or generic treatments
  • A combination of any of the above markers of discrimination

Thank you!
Maureen Kamischke
Hepatitis B Foundation

Hi @maureen.kamischke,

Great initiative and I hope you get somewhere with this. We have users from so many countries on this forum where HBV medications are highly subsidised and can attest to the fact that it helps so much. I hope that the US will follow suit at some point.


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Thanks, Thomas. I think many would be surprised to find how many in the U.S. find the care and management of their hep B to be cost prohibitive.