My name is Fu Ming, I am from Shanghai, China, and I am an “inactive HBsAg carrier”
I would like to share a data on hepatitis B in China (I searched government websites, media releases, and Chinese medical data， I think the data from 《The Lancet Regional Health - Western Pacific》 is more accurate. I usually keep a certain degree of suspicion and distance from the data released by the Chinese government)
New progress in HBV control and the cascade of health care for people living with HBV in China: evidence from the fourth national serological survey, 2020
Findings
HBsAg prevalence in 1–69-year-olds was 5.86%; in children 1–4 years of age, seroprevalence was 0.30%; 75 million people were living with HBV nationwide. Among HBsAg-positive individuals 15 years and older, expert medical examination found that 78.03% were HBsAg carriers with no evidence of liver damage, 19.63% had chronic HBV with liver enzyme abnormalities, 0.84% had evidence of cirrhosis, and 0.15% had evidence of liver cancer. 59.78% of HBsAg + individuals were aware that they were positive before the survey, 30 million were unaware; 38.25% of those who knew they were positive (17 million) had medical indications for antiviral treatment, and 17.33% of these individuals (3 million) were being treated with antivirals.
While sharing, I want to express my personal opinion. I think China needs https://www.hepbcommunity.org/ (my judgment is based on my personal experience with hepatitis B, China’s current social situation, China’s Internet penetration rate, the size of China’s floating population, and the busy medical system). Busy doctors cannot provide more expertise/encouragement for a single patient (at the same time, we must realize a realistic problem. The Chinese government has set up a Great Firewall, which to some extent hinders people from obtaining more expertise).
Thanks @FUMING for sharing this data and your passion for improving the lives of others.
I am wondering if you have problems accessing HepBCommunity.org from Shanghai at all. If not, I could push promotion through some Chinese clinicians that I know. This might start building up the Chinese-speaking community here on the forum (for which we do have a sub-forum). I would be happy if you can share it among your community as well.
Because my job requires it (international trade), I use VPN frequently. I usually visit HepBCommunity.org through VPN. I just tried to turn off VPN and change the Chinese web browser to visit HepBCommunity.org, but encountered problems. Tomorrow I will try to let different friends visit HepBCommunity.org in different places in China, and I will get more accurate answers.
I believe that the Chinese clinicians you know are also very willing for Chinese hepatitis B patients to visit HepBCommunity.org, because Chinese clinicians are too busy and they cannot provide more expertise/comfort for a single patient.
The Chinese social platforms I use are: https://weibo.com/, https://www.douyin.com/, WeChat. I will search for hepatitis B information on these social platforms. If there are people who need help with hepatitis B knowledge, I will leave them a message and recommend them to visit HepBCommunity.org and www.hbvhbv.info.ThomasTu
Regarding whether HepBCommunity.org can be accessed in China, I did a simple test this morning. I asked 7 friends living in different provinces in China (they live/work in: Fujian Province, Jiangsu Province, Shanghai, Chongqing, Xinjiang Uygur Autonomous Region, Tibet Autonomous Region, Inner Mongolia Autonomous Region), and they can all access HepBCommunity.org (one of them uses PC to access). I will attach the screenshots of these friends accessing HepBCommunity.org (you can see that they accessed at different time points).
At the same time, I want to point out that my simple test still cannot represent all. It is necessary to realize that the Chinese government has set up the Great Firewal, which will bring some uncertainty/change factors. Because you have plans to establish a Chinese-speaking community (sub-forum) on HepBCommunity.org, I must remind you of this (I think it is very important)
Thank you for all of your work, @FUMING, that’s really useful to know. What’s also great is that there are some people who can automatically translate the entire site into Chinese.
I also appreciate your offer to promote HepBcommunity on these social media sites.
We already have some Chinese speaking clinicians on the forum (e.g., @yuan), but yes it would be great to have more representation. I will be in Beijing for a large hepatology conference in March, so it might be a good opportunity to increase promotion of the site.
Drug Clinical Trial Registration and Information Disclosure Platform
This website belongs to the Drug Evaluation Center of the China Food and Drug Administration (a government agency). You can add hepatitis B-related search terms in the search bar to see the clinical trials of different drugs in China. I hope it will be of some reference to you.
Thanks @FUMING, looks really interesting and could be useful for our Chinese speakers! Would you mind making a post in Chinese in the region-specific subforum (Region Specific Support - Hep B Community)?
