Hi all,
Happy to say that anyone with chronic hep B who resides in NSW, Australia at the moment can enter our Hep B Writing competition, yeah~~!
The winner will get $250 cash and every participants will get rewarded somehow.
Why do you hesitate? Just open a Word file and start writing:)
And send it to hnsw@hep.org.au
Looking forward to reading your stories!
Mina from Hepatitis NSW
1 Like
I hate to say it, Mina, we want a cure and not winning a writing competition.
1 Like
Hi, @Stephenw
I understand why you’re saying this, and I hope you get what you’re hoping for.
It’s not easy to write about something when you don’t even want to think about it.
With all due respect, hopefully someone here could still consider sharing their ‘waiting for cure’ story for others and earning some money, I think.
Again, I truly hope you get what you want to soon.
Kind Regards,
Mina
Hi @Stephenw, completely understand your viewpoint.
I would like to offer a different one: to increase the funding and increase awareness of hepatitis B, we need to really change its perception in society. For this, we do need the stories from the affected community to change minds and provide context.
I say this as someone doing the actual research for a cure that every opportunity we can take to raise the world’s consciousness to this condition, the better the chances we have for resourcing, funding, and attracting bright minds to this super difficult problem.
I do encourage anyone who might be eligible for this competition to consider entering and sharing your story.
Thomas
1 Like
The HBF in America asked its viewers to share their stories for years. I believe that to be very helpful to people and their families struggling with HBV. But to write to win a competition is different.
Hi @Stephen,
The name of ‘competition’ might be challenging you, I understand.
We would like to reward any effort of people writing stories for their time and care. Everyone will be rewarded in some way.
I apologise if it might hurt your feelings. But our intention is as what Thomas said.
Mina
Dear @Stephenw,
This is a great point and I hadn’t really thought of it this way. I agree with you that a competition can frame it in a way that is unnecessarily adversarial, particular for what is being achieved.
@Mina, while the intentions are good, it may be worthwhile considering for future. Do you think there are possibilities in future to, for example, assemble the entries into an anthology, so that it could be made available to the hepatitis B affected community to let them know that they’re not alone? Of course, it would mean making sure that everyone is appropriately remunerated, but it would be something that might make a bit more impact in the community too.
Thomas
1 Like
|
|
Jack Wallace reacted to your message: |
Thank you so much for taking the time to talk to us about this Sharing Stories project.
We chose a competition format mainly because we needed a due date for budget purposes, and it allowed us to allocate more of the funding on this project. During our first competition (Chinese and Korean), this approach was convincing, and there were 12 participants wrote stories and all received prizes.
However, we never intended for it to feel unnecessarily adversarial. We’ve taken your feedback seriously, and we’ll definitely keep it in mind for future projects.
We’re still very much looking forward to hearing your stories. While we know there are some limitations on our end, if you live in NSW and you’re visiting this website, we’d really love for you to share your story with us.
email address hnsw@hep.org.au
1 Like
Great to hear, @mina!
Completely understand the practical limitations that you are under and thank you for being open to the feedback from the community for future approaches.
Again, I encourage anyone who is eligible to enter this competition!
TT