Hep B Discrimination Registry

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Dear all,

The Hep B Foundation has started a registry for Hep B-related discrimination here: Hepatitis B Discrimination Reporting Survey

The purpose of this registry is to document and track discrimination related to hepatitis B. Discrimination is defined as being treated differently because of one’s hepatitis B infection. For someone with hepatitis B, this can mean exclusion, denying benefits, denied employment, education, training, goods or services, or having significant burdens imposed on an individual due to their infection status.

I think this is an incredibly important registry to drive change. There needs to be a large-scale collection of the impacts of Hep B discrimination to:

  1. Understand how widespread Hep B discrimination is.
  2. Know where to focus efforts of change.
  3. Provide specific instances and scale of discrimination to the people in charge (rather than “we’ve heard that this happens…” etc.)

Your responses are not attached to your name or any other personal identification to ensure answers will be completely confidential. Please feel free to skip any questions that you are not sure how to answer or that you are uncomfortable answering.

If you have any questions regarding this survey, please contact discrimination@hepb.org.

Cheers,
Thomas

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If you want to talk about anything that has happened to you and receive peer support, I encourage you to post in this thread:

https://www.hepbcommunity.org/t/how-have-you-dealt-with-discrimination-because-of-your-hbv-status/

Cheers,
Thomas

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It has been almost 4 years since the Hepatitis B Foundation established this Hep B Discrimination Registry. As a result, 560 individuals around the world have reported the discrimination they have experienced towards their Hep B status.

Have a read of the article: Hepatitis B discrimination: global responses requiring global data by @CFreeland, Anousha Qureshi, @Jack_Wallace, Kenneth Kabagambe @Kabagambe , Hailemichael Desalegn @Hailemichael_Desaleg , Chris Munoz @YellowWarriorsPH , Dee Lee @Dee , Theobald Owusu-Ansah, Danjuma Adda, Gibril Ndow, Sarra Yousif, Hala Abdalla, Omer Kheir, @ThomasTu & @chari.cohen.

This is the largest primary collection of hepatitis B-associated discrimination events to date. The article highlights discrimination towards visas, employment, education and much more despite feeling healthy and motivated to work.

Let us know what you think of the article in the comments below. Moreover, if you would like to discuss your experience of discrimination towards your Hepatitis B status please comment in this thread: https://www.hepbcommunity.org/t/how-have-you-dealt-with-discrimination-because-of-your-hbv-status/

All the best,
Sumaya.

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Hi @Sumaya,
Thanks for sharing this great article. The HBF has done an amazing job investigating this issue by creating a registry. I am unsurprised by the findings, as I have heard from many patients who share similar experiences. I hope that more HBV education and knowledge will help stop or reduce such discrimination. HBV patients need to work. They need health care and education. All HBV patients need the same things that every other fellow needs. We have more work to do, and let’s keep fighting. Thanks, Bansah1

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