Hi @Limin ,
I was diagnosed in 2017 with cirrhosis. This was a couple of years before hepbcommunity came into existence. I have always wished that I had this resource back then so I would have known to get my test results. Now, my test results only go back to 2019. At some point, I am going to do a records request from the hospital where I was first diagnosed with cirrhosis, because I want to have exact numbers from back before I started treatment and my HBV DNA was in the millions.
I only have a couple of US results but they have also done CT scans and MRI’s multiple times over the past few years. I think the CT’s and MRI’s are more accurate or specific than Ultrasounds? But they are much more costly than ultrasounds, so I don’t think they do them regularly unless you have cirrhosis?
Even though I was a network engineer and also worked in IT most of my life, I have always had a hard time understanding and keeping liver lab terminology straight. Working in one technical field doesn’t mean it transfers over to other technical fields. I basically understand surface antigen, antibody and DNA viral load. I went looking through what results I have access to and there is so much medical terminology that I have looked up and I still don’t understand a lot of it.
I don’t know what data you are looking for, but if I was to post each full result then this would be about a 20 page response, so I will just give you the summaries of each test from 2019-present. If you are looking for something more specific, let me know. I am also having an ultrasound at the end of this month. I didn’t get ultrasounds at the normal intervals the past few years obviously due to the pandemic. It looks like the tests basically have the same impression throughout. I also get endoscopies every year and last year had esophageal varices surgery which was not well tolerated. One good thing is that my AFP tumor markers have always been negative. Although, my last colonoscopy ended with surgery on multiple pre-cancerous cysts even though the colonoscopy 2 or 3 years prior showed nothing. My current GI said that it should take much longer than a couple of years to end up with pre-cancerous cysts up to the size of what had to be removed, so he was a bit perplexed by that. I have no clue if potential cancer in one area of the body precludes cancer in other parts of the body, especially organs that are already impaired, but I don’t think so?
I hope this was what you were looking for and it helps because extracting and posting all this data took me about a year… jk!
-Paul
06/17/2019 CT Scan
IMPRESSION:
Normal caliber of the patent aorta and its branch vessels. Inflammatory fat stranding surrounding a patent inferior mesenteric artery, nonspecific, with focal vasculitis not excluded.
Nonspecific 1.5 cm hypodense lesion in the right hepatic lobe with possible peripheral enhancement, incompletely evaluated on this study. Further characterization with hepatic protocol MRI recommended, particularly given findings of cirrhosis.
Apparent wall thickening of the distal esophagus is likely secondary to unopacified periesophageal varices, with esophagitis or neoplasm not excluded.
Nonspecific 7mm left lobe hepatic hypodense lesion.
Hepatic cirrhosis with sequelae of portal hypertension including splenomegaly, prominent umbilical vein and multiple portosystemic collaterals including prominent periesophageal and perigastric varices. Minimal free pelvic fluid.
Cholelithiasis without CT evidence of cholecystitis.
09/26/2019 CT Scan
No acute intrathoracic abnormality. Specifically, no evidence of intrathoracic vascular abnormality.
Cirrhotic configuration of liver with multiple subcentimeter hypodense probable hepatic cysts.
Cholelithiasis
08/03/2020 US
IMPRESSION:
Suggestion of ventral supraumbilical abdominal wall defect measuring approximately 1.4 x 3.8 cm, with suggestion of herniation of abdominal contents, possibly bowel into the defect. If clinically indicated, CT may provide further specificity.
08/27/2020 CT Scan
IMPRESSION:
No acute intra-abdominal or intrapelvic abnormality.
Cirrhosis with sequelae of portal hypertension including splenomegaly, prominent recanalized umbilical vein and multiple portosystemic collaterals including prominent periesophageal and perigastric varices. Possible hepatic steatosis.
Cholelithiasis.
04/05/2021 US
IMPRESSION:
Cirrhotic and borderline enlarged liver. Hepatic steatosis. Findings of portal hypertension.
Splenomegaly.
Cholelithiasis without sonographic evidence of acute cholecystitis.
09/30/2021 MRI
IMPRESSION:
No hepatic lesions identified suspicious for hepatocellular carcinoma at this time.
Cirrhosis with sequelae of portal hypertension.
Similar to slight interval increase in conspicuity of a 5 mm cystic lesion in the pancreatic tail, possibly an IPMN.
Cholelithiasis.
04/15/2022 US
IMPRESSION:
Cirrhotic configuration of the liver with signs of portal hypertension including mild splenomegaly and prominent portal vein.
Cholelithiasis.