In collaboration with Hep B Foundation’s #BtheVoice story bank, we are producing a series of short stories for people living with hepatitis B in Taiwan. Here is our inaugural #BtheVoice Taiwan story. As a novice in video editing, all comments are welcome.
This story is about a young woman with chronic hepatitis B who never got treated nor taken seriously until she was diagnosed with a 20-cm huge liver tumor at the age of 36. After surgical removal, the HCC recurred and spread to her lung within a few months. She is currently fighting for her life and begging the government insurance to cover the first line immunotherapy + targeted drug therapy to give her a better chance of survival and to raise her two young children.
You can watch the video at:
HBF’s YouTube channel here: https://youtu.be/a0cftLrld6s
THICA’s YouTube channel here: https://youtu.be/oa6lcI1BMBM
Thanks for highlighting these issues. The more stories we can get out there, the more impact we can have in trying to prioritise hepatitis B for decision makers and the community!
I just started the Medical Assisting program at my community college. They sent me a policy yesterday stating that you must have proof of vaccination or antibody titer to start an externship. Under this policy, I would not be able to finish the program due to chronic Hepatitis B. I was extremely disappointed, since caring for people was my passion.
I hate to use the disability card, but it was necessary. I can’t believe they still have this policy 11 years after the DOJ ruling. Chari at the Hepatitis B Foundation is now helping me out to change their policies. I am so very thankful.
Hi TitanMoom, Sorry to hear that. If you are in the US, I am happy to chat and learn more details about it by email: email@example.com