How are you doing?: What it means to live with HBV

I’m doing the same thing this stress is something I never felt I just found out too I’m 41 yro trying to adjust

1 Like

Hola a todos si me gustaría opinar también he Sido diagnosticado recientemente y el estrés los miedos son algo que nos hace sentir algo desanimados tengo 39 años pero tanto como Thomas , Paul y los demás compañeros y compañeras de este foro nos han contado como comenzaron el proceso lo más importante es el amor de tus seres queridos el tratamiento y seguimiento cada 6 meses o cuando el médico lo indique aunque también soy nuevo diagnosticado tengo fe que podemos llevar una vida normal y alcanzar nuestras metas yo me pongo a ver películas y estar con mi esposa y jugar con mi hija eso me ayuda mucho que hacen para distraerse y sentirse más tranquilos gracias a todos y todas muchas bendiciones esperemos que pronto la cura este lista

3 Likes

I give you a lot of credit an blessing thank you an your right. It just seems we gotta learn to Except what’s going on so we can get back to our regular lives feeling normal again

2 Likes

Es bueno imaginar y sentir que tenemos que regresar a una vida normal y llenarnos denuevo de fe y esperanza ánimo A todos este foro es grandioso para no sentirnos solos y aprender de los que tienen más experiencia con sus consejos y información nos ayudan a quitarnos el miedo gracias a todos Thomas , Paul , joan block ,Eddie saludos y bendiciones

3 Likes

Hi hopefulone,

I think this was a great idea to start this thread. A topic where we can just talk about how we are feeling on any given day. The medical, physical, mental and emotional struggles can be significant at times, so it will be nice to have somewhere to share those struggles and maybe even vent and let off some steam here and there.

I think it will help so many people to know what others struggle with aside from all the technical and scientific aspects. Like “I am having a lot of pain below my rib cage today.” or “I just can’t seem to get on top of my fatigue lately.” Feeling solidarity in our daily struggles can have a positive effect even though it’s about a negative thing.

I just wanted to let you know that this was a great idea and I have yet to post on this topic till now because, I have been posting a lot lately and I didn’t want to inundate everyone with more of my issues. Although, this seems like a good place to do it.

Kudos!

-Paul

3 Likes

As for me right now the last couple weeks the mornings are the hardest and being not able to just stop thinking about it in the back your head. towards the end of the day I’ll feel a little better I just want this stress to stop some how

1 Like

Hey there Eddie,

Hang in there buddy. Over time, things will become the new normal. You will see that you can still live life. Maybe try to add something to your morning routine. Is there somebody in your family or friends that you can talk to in the mornings. Having a pet can help, it helps me and others. If nothing else, try to find something to fill those hard times. I am not belittling what you are going through, but you are still in an early enough stage that your liver can stay healthy and possibly even heal. The more you stress out and worry, the worse it is for your liver. With proper care and lifestyle awareness, you can have plenty of time to wait out a cure. Do all you can on your part to help your liver not to get to worse stages. You especially don’t want to progress to cirrhosis. As mentioned by many on here, you can help yourself with healthy eating, exercise and keeping toxins to a minimum. Part of that is trying to keep your stress levels lower, which includes not stressing too much about this disease.

Keep up with your doctor’s appointments, keep up the necessary monitoring. I can’t remember if you are on antivirals or not. If so, then take your meds every day. I have mentioned this before, and it may sound easier said than done, but find somewhere you can volunteer. There are so many places that need help and you can even do it remotely a lot of the time, especially due to Covid. Helping others, helps ourselves even more. It might give you that little edge that you need to make it from day to day, week to week.

You really sounded like a cool and nice person when we were in the virtual meetup. I wish you all the best and hope you can find a way to destress. You can do this!

-Paul

5 Likes

Dear Eddie, listen to Paul. He’s very wise! And I want to reaffirm what he said about the fact that you’re early in the journey of living with hep b, so don’t be too hard on yourself for feeling scared, anxious and stressed. Of course you want to definitely decrease your stress because that’s always something to avoid, especially when living with a chronic liver infection like we all are. However, just as there are 7 stages of grief when someone close to you dies, I think we go through similar stages when we’re first diagnosed with hep b (or any life altering diagnosis): 1. Shock · 2. Denial · 4. Guilt & Pain · 5. Anger · 6. Depression · 7. Acceptance. We don’t necessarily go through all of these stages and we can sometimes go back and forth between stages. But the primary message is that it’s absolutely normal to feel all the different feelings when first diagnosed with hep b, Even after knowingly living with hep b for more than 30 years like myself and having essentially reached acceptance, I can still feel angry or depressed when fatigue wears me down or when I had a liver cancer scare 3 years ago. So as Paul said, the good news that you should focus on is that you’re still young enough to reduce your risk of developing serious liver damage, and a cure might even be found in the next 5-10 years! There’s hope!! Always, Joan

7 Likes

Thank you @Joan_Block @PuallyHBV for those encouraging words I needed that🙏 but as of right now I don’t have to take any antivirals yet. I just have to go to these appointments every six months. I do have mild fatty liver from alcohol don’t drink any more but I’ve lost 70 pounds on my diet since then My lab results for ultrasound and CT didn’t show anything except some cyst that are benign pretty much but nothing else. everything they said looks good

2 Likes

Thank You @Joan_Block ,

That was very kind of you to say. I will try to aspire to your kind words as often times I fail; even on here. Even though I am an analytical and technical person, at times, I tend to let my heart and passion get the best of me. It’s a good thing that we have people like you and Thomas that are technical, have great hearts and are wise. Even though Thomas is younger than me, he has been a great example for me this past year of being a good person, following your passion and your heart but with temperament and wisdom. It’s funny because it’s the older looking up to the younger and being inspired. I admire the both of you so much and it makes me want to be a better human being.

-Paul

P.S. This has nothing to do with wisdom, just stupidity: I just started taking my pills even though I took them earlier today. And yes, they are in a weekly pillbox. Good thing I caught it before I took the Vemlidy and Nadalol. What a brain fart!

2 Likes