Thank you @ThomasTu for replying and flagging this to the frenchies!
Je suis Marion, une chercheuse francaise basee a Londres, et je travailles sur HBV depuis maintenant presque 8 ans - ravie de faire votre connaissance!
Thomas a deja repondu a de nombreux aspects, mais je me permet d’ajouter:
Comme disait Thomas, HBs n’est malheureusement pas la cible du traitement actuel, donc les chances que la presence de cette proteine diminue avec les traitement actuels sont malheureusement tres faibles. Cependent, beaucoup de traitement curatifs requierent d’avoir controle le virus (donc votre cas avec une charge viral indetectable) avant d’entrer dans l’essais clinique - donc vous etes deja sur la bonne voie!
Oui les traitements testes actuellement ont un focus sur les personnes ayant des taux d’HBs faible, mais cela ne representent vraiment pas l’entierte de la population vivant avec HBV!! Donc, la recherche doit et va continuer!
Je ne suis pas clinicienne, donc pour la fibromyalgie je n’ai pas d’avis/expertise, je dirai seulement que je n’ai jamais entendu parler de cette association avant votre message. La literature scientifique est malheureusement parfois confuse et pleine de fausses associations ou faibles associations qui peuvent parfois faire peur. Envoyer un message sur ce forum est une tres bonne idee et j’espere que d’autres cliniciens pourraient vous apporter d’autres informations sur cette association.
Thank you Thomas just wanna let you know this platform gave me hope an so much support when I myself didn’t know where to turn. I’m so proud to know Thomas tu an others I met down this path. who showed so much support an ideals to help other coupe an figure out there conditions.
Je suis une autre Marion😉 — non pas chercheuse, mais impliquée dans l’animation de ce forum. Bienvenue dans cette belle communauté, vous avez eu raison de nous rejoindre !
J’espère sincèrement que vous y trouverez des réponses claires et rassurantes à vos questions, ainsi qu’un véritable soutien, tant de la part des experts que des autres membres. Un grand merci à toutes les personnes qui ont déjà pris le temps de vous répondre — leurs contributions sont précieuses et témoignent de l’esprit d’entraide qui anime ce forum.
N’hésitez surtout pas à continuer à poser vos questions ou à partager vos retours: ce forum est avant tout un espace d’échange, d’orientation et de solidarité.
Au plaisir de vous lire prochainement,
Très belle journée à vous,
Marion
Bonjour, merci pour votre accueil. Ce site est important pour moi. Il permet de partager et d’obtenir des informations.
Je vais creer un poste pour mes questions concernant l’antigene HBS.
Merci pour votre retour, Marie.
Nous sommes ravis que ce forum vous accompagne et vous apporte le support attendu. Je ne peux que vous encourager à poser vos questions et à partager vos expériences avec les autres membres.
Excellente journée et au plaisir de vous lire.
Marion
Greetings everyone. My name is Derick from Cameroon. Indeed i feel relief hearing testimony of people actuality get cured of the HBV virus. I am extremely happy for everyone who has been cured of HBV. I was diagnose with the virus 5yrs ago and has not been on any medication since then. Unfortunately my financial situation can’t permit me buy the drugs. On my own, I’m struggling to live a healthy lifestyle of no alcohol, red meat or fatty things as recommended by my dictor but yet i am still having some symptoms like extreme fatigue, loss of stamina and also loss of weight. Please i need help to get the medication
The first thing to do is get a hep b check to know what stage of hep b you have. That will give your doctor an ideal what the next steps would be depending on your results. You may not need meds but it seems it’s been a while since last checked. I also recommend that you get a full liver panel to make sure your liver is doing ok. When you do all these things you should have an answer from your care physician. Then you weed out the problems that may not have anything to do with hep b.
Thank you so much Mme Caraline. I will so much appreciate if you can do that for me. I am presently in Douala Cameroon . My contact: +237679585348. My email address: ambederick2022@gmail.com
The doctor actually requested that I need to do a further test to know which level the virus is in my blood but the test was very expensive for me. He said it’s 180 000frs approximately $300. That he was going to collect my blood sample and send to France where the testing will be carryout before I come for the result after a week. That my cohntry Cameroon doesn’t have the necessary machines or equipments to do the test. He said only after the test that he will tell me if I need to be taking drugs or not and advised me on what I shouldn’t be eating in order not to aggravate the situation and also that I should be doing regular exercise. But unfortunately i i didn’t have the money for it but rather try to avoid everything he asked me to hoping that i would be fine. But presently the symptoms are there which is getting me so worried. I feel nauseated, loss of weight and extreme fatigue at all time. I think its a call for concern
Dear Derick,
I am sorry to hear that you are not feeling well.
Hepatitis B is most often asymptomatic. It if often detected on routine testing. There is a cascade for assessement of your liver condition which will then help decide whether treatment is needed or not.
Unfortunately, as you have clearly outlined, some of the tests are just not available or too expensive. (such as the viral load).
There are alternate ways to make decisions including checking your ALT and platelets as well as ultrasound. If there are no changes on these test results, it would be reasonable to wait and continue to monitor.
Where access to testing is challenging, treatment without all of the tests can be considered. (WHO guidelines also recommend this).
Thank you for sharing your story and sorry to hear about your situation. Maybe SOS hepatitis Cameroon may be able to support you: https://www.soshepatitescameroun.org/
I agree with @aliceulee that you should consider discussing with your doctor about treatment according to the WHO guidelines (which suggest considering treatment if these tests are not accessible).
Thanks Sir. I just searched about them now and noticed they have office here in douala my city. I will go there. I feel like I’m developing hbp due to the hbv issue. I"m always worried in my heart and living in fear
just wanna let you know this platform gave me hope an so much support when I myself didn’t know where to turn. I’m so proud to know Thomas tu an others I met down this path. who showed so much support an ideals to help other coupe an figure out there conditions.
. My contact: +237679585348. My email address: